A BARRY dad whose son was born with a degenerative condition only 400 people have ever been diagnosed with, has taken on a charity challenge in support of Ty Hafan.

Huw Liddell's son Osian was born with the rare degenerative autoimmune disorder called Aicardi-Goutiere Syndrome. As well as being extremely rare, around 40 per cent of children diagnosed with it do not survive past the age of five.

Mr Liddell, took on the Three Peaks Challenge - climbing Snowdon, Cadair Idris and Pen y Fan, all in less than 15 hours - to support Sully based children's hospice Ty Hafan, who have supporting Osian. He was part of Team Scrambled Legs, a group of friends who came together to take on the peaks.

Mr Liddell said: “Ty Hafan means so much to our family because they give us the support and the facilities to be the best parents we can be, which ultimately gives our boy the best life possible.

“The event was a great experience because I was able to see first-hand all of the amazing people who went out and stretched their bodies and minds to the limit, all to make Ty Hafan possible.”

Now in its 18th year, the Three Peaks event has seen more than 5000 people travel from all over the world to take on the challenge, which has raised more than £1.5m for Ty Hafan.

Marketing and events officer for Ty Hafan, Mair Kinsey said: “We would like to say a huge thank you to all the walkers, our volunteers and GE Aviation Wales for kindly sponsoring the event for the 18th year in a row.

"Our supporters never fail to inspire us and we are especially grateful to the Ty Hafan dads who fittingly finished the challenge on Father’s Day.”

Ty Hafan is preparing for its Tredegar Rainbow Run on Saturday, July 9. To take part, visit www.rainbowrunwales.co.uk